Community experience

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COMMUNITY EXPERIENCE #1

For my community experience, I chose to interview my mom. At first, I didn't really know where to begin, or how I was going to fill up two pages on my mom's health history and the history of some of the women in my family. However, about two minutes into the interview, I was thoroughly surprised. Although, I already knew most of the surface details, it turns out there was quite a bit more than I'd realized.

On my mother's side of the family, there have been a few breast cancer diagnoses; one of her sister's has suffered from severe depression and anorexia, as well as a disease called Wilson's disease. My mom also has this disease, which I will discuss further on.

I was born when my mother was all of 18 years old. When I asked her about birth control in those days, she told me that of course it was around via condoms and the pill, but regretfully, she didn't use either. Being pregnant at such a young age, was for her one of the worst things ever, both emotionally and physically. She told me that although she doesn't regret me for one minute, at 18 years old, she was still growing. She wasn't thinking like a mother. Her bodyy was growing one way and stretching another way. In the long run, she received a gift, but to get it her whole way of life and her destiny were changed.

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Even though she was young, she was relatively healthy throughout the pregnancy. She even smoked and drank moderately up to the 4th month, which thankfully didn't have any severe side effects. She said that at that time, the risks of such behavior weren't really known. Fortunately, I was born a healthy baby, although I do have a stigmatism and have to wear glasses, which could be a result of some of those behaviors.

5 years later, my sister came along. My mom was a little older and a lot wiser. The pregnancy went relatively well until an infection developed in my mom called Streptococci. Although, it didn't affect my sister long-term, it did cause her to be born prematurely one month early.

My mother didn't smoke or drink at all while pregnant with my sister. But, she did before and afterwards. She started smoking when she was 15. When she was 8, she began to have serious shortness of breath. When she went in to be checked, her doctor discovered on her lower left lobe of her left lung, was the very beginnings of Fibrosis. She quit cold-turkey that day.

As I mentioned earlier, my mom also has a rare disease known as Wilson's. One of her sisters also has it and another one of her sister's is a carrier.

A women's copper count is supposed to be 50. When you have Wilson's disease, there is too much copper in your blood, and your system doesn't know how to get rid of it. For example, if you eat foods that are high in copper such as chocolate, almonds or mushrooms, and you have Wilson's, your body can't break it down properly. Copper is a metal and it builds up. Your body has no place to store it so it goes to either your liver or your brain.

My mom's father and mother are known as carriers of the disease. Somewhere along the line, way back when, on both sides of her father and mother, a cousin slept with a cousin (back when this was accepted) and it was a 1 in 1000 chance that my grandparents would meet each other, get married and have kids. Well, they did and had kids in fact, but as I said before the disease only developed in my mom, one of her sisters and made another one of her sister's a carrier.

My aunt was discovered with the disease first and this was because when Wilson's is in some of its advanced stages, signs of it become more obvious. One of these is a copper colored ring around the pupil of the eye, which my aunt had. Doctors then recommended that all of my grandparent's children get tested. The test was a liver biopsy, and my mom, queasy over needles refused to do it.

Certain things trigger Wilson's such as stress and smoking to name a few. At the time, my mother was still smoking, and she was under high levels of stress, because my dad was basically an alcoholic and gone all the time.

She told me that about years after she had refused to take the test, she was blow drying my sister's hair and all of sudden she thought, "I can't do this, something's wrong." She said that the thought of finishing to dry my sister's long hair seemed absolutely overwhelming. It was a panic/anxiety attack.

When she went to get tested, she was tested positive for Wilson's disease and her copper level was at 110. For 1 year she had to take Penicillimin until her copper level was back down to 50. Now she has to take 150mg of Zinc daily on an empty stomach, and every 6 months she has to do a 4hr urine analysis, and give 6 vials of blood to be tested to get her copper count checked.

It has been and she has remained pretty healthy since. She had my brother when she was 5 and it was a relatively healthy pregnancy although he was weeks late and weighed a whopping 11 pounds when he finally arrived.

Of course I've known about all of these situations, but never in as much detail. It was very interesting and I discovered that it was information that I need to be very aware of.

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